Foundation for Prader-Willi Blog (14)

Learnings from the Global PWS Community at the 2022 IPSWO Conference

In July 2022, FPWR’s Executive Director Susan Hedstrom, Director of Research Programs Theresa Strong, and Lauren Schwartz, FPWR’s leader of the Mental Health & Behavior Research Programs, attended the International Prader-Willi Syndrome Organisat...

August 8, 2022 Read More

Topics: Research

2022 PWS Research Symposium and Family Conference

This September 29 - October 1, parents, caregivers and medical professionals from across the country will once again be coming together to connect, learn, and be inspired at the Foundation for Prader-Willi Research’s Annual Research Symposium and Fam...

August 6, 2022 Read More

Topics: Research, Parents, Learning

Why I’m Crossing the Globe for FPWR’s Annual Conference

A special contribution by guest blogger Will Greene When our son Ari was diagnosed with Prader-Willi syndrome in January 2022, FPWR emerged as a beacon of hope in our caregiver journey. That’s why I’m making the long trip from Singapore to Chicago to...

August 5, 2022 Read More

Topics: Stories of Hope, Parents

Top 10 Reasons to Attend the 2022 PWS Family Conference

Join us September 30-October 1 for our annual gathering of movers, shakers, thinkers, and doers at this year’s FPWR Family Conference! Here are the top 10 reasons you need to be there:

August 1, 2022 Read More

Topics: News

FPWR 2022 Conference Speakers Announced

You won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October in Chicago, IL. Are you ready to join like-minded game-changers with direct access to the people, knowledge, and inspiration you need to help your chi...

July 19, 2022 Read More

Topics: News

D-dimer Study Yields Important Findings on PWS and Blood Clots

People with PWS have a higher risk for developing blood clots than the general population, but the risk is poorly understood. A recent study explored whether testing for a protein called D-dimer could be an informative tool for predicting blood clot ...

July 18, 2022 Read More

Topics: Research

People With PWS Share Their Hopes and Struggles In New Study

A tremendous amount of work has been done by The PWS Clinical Trials Consortium to understand and document the views of Prader-Willi syndrome families. Now, a new study validates what PWS caregivers have reported, by sharing first-person perspectives...

July 5, 2022 Read More

Topics: Research

Recommendations for Management of Sex Hormones in Adults With PWS

Two new papers from an international group of PWS expert physicians outline the clinical experience and provide recommendations for sex hormone replacement therapy in adult males and females with PWS.

June 28, 2022 Read More

Topics: Research

Insights Into the Sleep, Seizures, and Psychiatric Behaviors in PWS

A newly published paper examines sleep disorders, seizures, and psychiatric concerns in PWS. Thanks to almost 900 PWS families who completed multiple surveys in the Global PWS Registry, the study provides a great deal of valuable data and new insight...

June 21, 2022 Read More

Topics: Research

FPWR Blog

Categories

Learnings from the Global PWS Community at the 2022 IPSWO Conference

2022 PWS Research Symposium and Family Conference

Why I’m Crossing the Globe for FPWR’s Annual Conference

Top 10 Reasons to Attend the 2022 PWS Family Conference

FPWR 2022 Conference Speakers Announced

D-dimer Study Yields Important Findings on PWS and Blood Clots

People With PWS Share Their Hopes and Struggles In New Study

Recommendations for Management of Sex Hormones in Adults With PWS

Insights Into the Sleep, Seizures, and Psychiatric Behaviors in PWS

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