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FPWR Blog

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FPWR 2023 Family Conference - New Parents Welcome!

You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver, CO.
June 6, 2023 Read More

Topics: Parents, Adults, Children 0-3, Advocacy

‘He Shows Me Everyday What a True Superhero Looks Like’ Says PWS Mom

A special contribution by guest blogger Heather Osterman. Max came into the world with a bang...or more accurately, a limp body, not breathing, and blue. I went from being induced, since Max was quite cozy where he was, to a long labor, to an emergen...
May 31, 2023 Read More

Topics: Stories of Hope

Innovative FPWR-Funded Projects Receive Additional Funding

FPWR’s grant program focuses on supporting innovative, high risk/high reward research in its early stages, with particular emphasis on supporting projects that will lead to new treatments for PWS.
May 23, 2023 Read More

Topics: News

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disor...
May 10, 2023 Read More

Topics: Research

A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome

Mice have long been the preferred mammal model in research labs due to their cost, size, and tractable genetics. Their behavioral simplicity, however, limits a researcher’s options for studying the component features that may serve as surrogate measu...
May 9, 2023 Read More

Topics: Research, SYS

New Venture Philanthropy Investment: Palobiofarma

The Foundation for Prader-Willi Research (FPWR) has provided a new venture philanthropy award, in the form of a convertible loan, to Palobiofarma S.L., a Spanish biopharmaceutical company focused on developing innovative treatments for serious diseas...
May 4, 2023 Read More

Topics: News

‘The Amount of Love and Light He’s Brought to Our Lives Is Immeasurable’

A special contribution by guest blogger Rebecca Noel On May 25th our beautiful son Bron arrived to our tears of joy. He was so tiny and precious, and needed time in the NICU. He seemed to be making wonderful progress and we were full of hope. We had ...
May 2, 2023 Read More

Topics: Stories of Hope

Schaaf-Yang Syndrome Across the Lifespan [2022 CONFERENCE VIDEO]

In this one hour and 22-minute video, Dr. Christian Schaaf, Department Chair of Human Genetics at Heidelberg University, discusses current research into Schaaf-Yang syndrome (SYS). Click below to watch the video. If you're short on time, scroll down ...
April 25, 2023 Read More

Topics: Research, SYS

Small Community, Big Impact

FPWR’s community is made up of parents like you, determined to make a difference for our loved ones with PWS. Hosting a fundraiser is a meaningful way to support research, and it doesn’t have to take a lot of time or energy. Every event – big and sma...
April 13, 2023 Read More

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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