Topics: Research
Thanks to almost 900 PWS families who completed multiple surveys in the Global PWS Registry, a new study examining sleep disorders, seizures, and psychiatric behaviors provides a great deal of valuable data and new insights into the relationship betw...
Is your loved one getting a good night’s sleep? Sleep apnea is a major concern for people with Prader-Willi syndrome, affecting as many as 70% of all participants in the Global PWS Registry.
Back by popular demand is FPWR's Harvesting Hope Distance Challenge! Nearly 100 virtual trotters joined us for the challenge last year covering a whopping 3,750 miles during the 7-week period. How far can we get this year? That's up to you!
Topics: News
The Foundation for Prader-Willi Research (FPWR) is thrilled to announce the recipient of the 2022 Champion of Hope Award, James Resnick, PhD. The Champion of Hope Award was established to recognize individuals who have made impactful contributions to...
Topics: News
Twenty paintings are available to the highest bidders in a unique art auction benefiting the Foundation for Prader-Willi Research (FPWR).
Topics: News
A special contribution by guest blogger Claire Carucci. Our 17-month-old daughter Caroline has Prader-Willi syndrome (PWS), and it has forced me to be stronger than I ever thought I would need to be. When I was looking at this little baby in the hosp...
Topics: Stories of Hope
A special contribution by guest blogger Lisa Matesevac This summer, my family made our annual 15-hour trek to visit family in Buffalo, NY. This was a much-needed reprieve for our family as Evan, our teenage son with PWS, was recovering from recent sp...
Topics: Research
A special contribution by guest blogger Julie Foge Eliza turned eight this month, and it’s hard to put into words just how much our life has changed in that span of time. I knew it would the moment we got her diagnosis, of course, but it didn’t happe...
Topics: Stories of Hope
Temper outbursts are a common challenge for many people with Prader-Willi syndrome. The published study "The characteristics of temper outbursts in Prader-Willi syndrome" sheds light on temper outbursts in PWS. Drs. Rice, Einfeld and Woodcock, all ve...
Topics: Research