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FPWR Blog

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'She Is Tough, She Is a Fighter' Says PWS Mom Inspired by Daughter

A special blog contribution from Krysten Leighty. Krysten shared her story via our Stories of Hope Questionnaire.
March 2, 2023 Read More

Topics: Stories of Hope

Medical Devices Offer New Opportunities to Alleviate Symptoms of PWS

FPWR is investigating several devices that have been proven effective in treating a myriad of symptoms associated with other medical conditions & have considerable potential to relieve symptoms of PWS. Devices offer many advantages including an e...
February 22, 2023 Read More

Topics: Research

Orthopedic Challenges and Treatments in PWS [2022 CONFERENCE VIDEO]

In this 2-hour and 2-minute video, Dr. Harold van Bosse, a pediatric orthopedic surgeon at SSM Health/Saint Louis University/Cardinal Glennon Children’s Hospital, and Dr. Nora Wagner, an APTA board certified pediatrics clinical specialist, discuss or...
February 21, 2023 Read More

Topics: Therapeutic Development

Top 10 Reasons to Attend the 2023 Family Conference

Join us October 6-October 7 for our annual gathering of movers, shakers, thinkers, and doers at this year’s FPWR Family Conference! Here are the top 10 reasons you need to be there:
February 14, 2023 Read More

Topics: News, SYS

Global PWS Registry Advisory Board Changes

The Global PWS Registry launched in 2015 as a central repository of caregiver and patient entered data about living with PWS. The goals of the Registry are to better understand the full spectrum of PWS symptoms, expedite the completion of PWS clinica...
February 9, 2023 Read More

Topics: News

Can Breakthrough Obesity Drugs Wegovy and Tirzapatide Deliver in PWS?

You’re probably seen at least one headline heralding the remarkable successes of Novo Nordisk’s drug Wegovy (Semaglutide, 2.4 mg) and Eli Lily’s tirzepatide (currently only approved for type 2 diabetes – likely to be approved for weight loss later th...
February 7, 2023 Read More

Topics: Research

‘The Small Stuff Doesn’t Matter’: A Story of Hope from Sheri Mills

A special blog contribution from Sheri Mills. Sheri shared her story via our Stories of Hope Questionnaire.
January 26, 2023 Read More

Topics: Stories of Hope

Demographics and Comorbidities Among Hospitalized Patients With PWS

Dr. James Luccarelli, a researcher at Massachusetts General Hospital, recently published a study summarizing the demographic characteristics and medical complications of individuals with PWS who were treated at acute care hospitals in the United Stat...
January 18, 2023 Read More

Topics: Research

What's Happening in PWS Research [2022 Conference Video]

In this one hour and 17-minutevideo, Dr. Theresa Strong and the FPWR research team explore recent research breakthroughs and emerging standards of care for PWS.
January 11, 2023 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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