You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver, CO.
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This year's annual family conference brings you three of the world's top clinicians in Prader-Willi syndrome! As members of the PWS Clinical Investigative Collaborative PWS-CLIC, these experts know the latest in medical care and are ready to answer all of your medical questions. Each session will be tailored by age group. Learn more about our speakers below.
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Standards of Care for Children Ages 0-2
Dr. Jessica Duis is an Associate Professor of Pediatrics and Genetics at Children’s Hospital Colorado, University of Colorado, who sees hundreds of patients with PWS. In this session, she and her multidisciplinary team will provide an overview of care for people with PWS, ages 0-2, including medical needs, currently available medications, supplements, growth hormones, scoliosis screenings, and which doctors and therapists to see.
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Standards of Care for Children Ages 3-9
Dr. Parisa Salehi is a Pediatric Endocrinologist at Seattle Children's and SCH PWS Clinic Clinical Director, who sees hundreds of patients with PWS. In this session, she provides an overview of care for people with PWS over age 3-9 including medical needs, currently available medications, nutritional phases, ortho screening, GI, and which doctors to see.
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Standards of Care for Teenagers and Adults with PWS
Dr. Diane Stafford is a Pediatric Endocrinologist at Stanford University School of Medicine, who sees hundreds of patients with PWS. In this session, she provides an overview of care for people with PWS over age 10 including medical needs, currently available medications, supplements, labs, and sex hormones. Following Dr. Stafford's presentation, Dr. Lauren Schwartz will share take-home tips for caregiver self-care.
See all of our speaker bios here!
Learn more about our speakers and conference details!
With premier experts in their fields and the beautiful backdrop of Denver, CO, this year’s FPWR Family Conference promises to be an event to remember!
We have a killer deal on rooms ($199/night) but they are limited, and you will only get the discount code after you register for the conference! Learn more and register here. We look forward to seeing you in Denver!
