Foundation for Prader-Willi Blog

Natalie Brenneman

Fundraising coach Natalie Brenneman has been fundraising since her son, Evan, was 3 months old. Since then, she has hosted a variety of fundraisers for FPWR, but her favorite is One Small Step. She is a strong believer in the power of collective action and community-driven fundraising, and is dedicated to creating a world where everyone can feel empowered to make a difference. She is grateful for the opportunity to be a part of FPWR's mission and to make a positive impact on the lives of those affected by PWS.

Running for Hope: Meet Team FPWR 2025

They’re parents, siblings, friends, and advocates, and this November, they’ll take on 26.2 miles together for a cause close to their hearts. Meet Team FPWR, a passionate team of athletes raising awareness and accelerating research for Prader-Willi sy...

October 15, 2025 Read More

Topics: Stories of Hope, PWS People

Harvesting Hope 2025: Walk, Run, or Shake Your Tailfeather

Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October 16! Whether you walk, run, or waddle, every step funds critical research for Prader-Willi and Schaaf-Yang syndromes. And the best part? Thanks to a ge...

October 7, 2025 Read More

Topics: News

How 10 FPWR Families Turned Hope Into Action and How You Can Too

Thinking about fundraising for PWS research but not sure where to start? You’re in good company! These 10 parents all started in the same place—unsure, maybe even a little intimidated. But they took the leap. Not because it was easy, but because they...

September 10, 2025 Read More

Topics: Stories of Hope

From NICU to Leading the Walk: Miles’ Story and the Power of One Small Step

When Carolyn’s son Miles was diagnosed with Prader-Willi syndrome, she faced a new world of unknowns. But it didn’t take long for her to channel that uncertainty into action. Now, in her second year hosting a One Small Step walk, Carolyn is rallying ...

June 4, 2025 Read More

Topics: Stories of Hope

Share Your Rare: HopeFull Highlights for Rare Disease Day

As Rare Disease Day approaches on February 28, we want to spotlight the extraordinary qualities of our children with Prader-Willi syndrome, celebrating their unique passions and contributions to the world. Our objective is simple:to inspire hope. We ...

February 19, 2025 Read More

Topics: Stories of Hope

Harvesting Hope: Trot With Us To Make a Difference!

This fall, join us for a heartwarming and impactful challenge: Harvesting Hope—a fun, family-friendly distance challenge that supports Prader-Willi and Schaaf-Yang syndrome research.

October 3, 2024 Read More

Topics: News

Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research

Meet Team FPWR, a powerhouse group of eleven incredible individuals lacing up their sneakers to conquer the New York City Marathon on November 3, 2024! Each runner brings a unique story and a shared passion for supporting Prader-Willi syndrome resear...

September 12, 2024 Read More

Topics: Stories of Hope, PWS People

Sharing Strength for PWS Awareness Month

May marks Prader-Willi Syndrome (PWS) Awareness Month, shedding light on the complex genetic disorder that brings various challenges to individuals. However, it's important to remember that PWS doesn't define the incredible individuals living with it...

May 7, 2024 Read More

Topics: Stories of Hope

Share Your Rare: HopeFull Highlights

As Rare Disease Day approaches on February 29, we want to spotlight the extraordinary qualities of our children with Prader-Willi syndrome, celebrating their unique passions and contributions to the world. Our objective is simple: to inspire hope. We...

February 19, 2024 Read More

Topics: Stories of Hope

FPWR Blog

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Natalie Brenneman

Recent Posts

Running for Hope: Meet Team FPWR 2025

Harvesting Hope 2025: Walk, Run, or Shake Your Tailfeather

How 10 FPWR Families Turned Hope Into Action and How You Can Too

From NICU to Leading the Walk: Miles’ Story and the Power of One Small Step

Share Your Rare: HopeFull Highlights for Rare Disease Day

Harvesting Hope: Trot With Us To Make a Difference!

Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research

Sharing Strength for PWS Awareness Month

Share Your Rare: HopeFull Highlights

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