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FPWR Blog

Natalie Brenneman

Fundraising coach Natalie Brenneman has been fundraising since her son, Evan, was 3 months old. Since then, she has hosted a variety of fundraisers for FPWR, but her favorite is One Small Step. She is a strong believer in the power of collective action and community-driven fundraising, and is dedicated to creating a world where everyone can feel empowered to make a difference. She is grateful for the opportunity to be a part of FPWR's mission and to make a positive impact on the lives of those affected by PWS.

Recent Posts

Share Your Rare: HopeFull Highlights for Rare Disease Day

As Rare Disease Day approaches on February 28, we want to spotlight the extraordinary qualities of our children with Prader-Willi syndrome, celebrating their unique passions and contributions to the world. Our objective is simple:to inspire hope. We ...

Topics: Stories of Hope

Harvesting Hope: Trot With Us To Make a Difference!

This fall, join us for a heartwarming and impactful challenge: Harvesting Hope—a fun, family-friendly distance challenge that supports Prader-Willi and Schaaf-Yang syndrome research.

Topics: News

Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research

Meet Team FPWR, a powerhouse group of eleven incredible individuals lacing up their sneakers to conquer the New York City Marathon on November 3, 2024! Each runner brings a unique story and a shared passion for supporting Prader-Willi syndrome resear...

Topics: Stories of Hope, PWS People

Sharing Strength for PWS Awareness Month

May marks Prader-Willi Syndrome (PWS) Awareness Month, shedding light on the complex genetic disorder that brings various challenges to individuals. However, it's important to remember that PWS doesn't define the incredible individuals living with it...

Topics: Stories of Hope

Share Your Rare: HopeFull Highlights

As Rare Disease Day approaches on February 29, we want to spotlight the extraordinary qualities of our children with Prader-Willi syndrome, celebrating their unique passions and contributions to the world. Our objective is simple: to inspire hope. We...

Topics: Stories of Hope

2023 Harvesting Hope Distance Challenge: Make a Real Difference

The Harvesting Hope Distance Challenge is back, and it's your chance to join a heartwarming community, get moving, and make a real difference. Whether you're a seasoned walker, a jogging enthusiast, or someone who just loves the idea of taking positi...

Topics: News

Small Community, Big Impact

FPWR’s community is made up of parents like you, determined to make a difference for our loved ones with PWS. Hosting a fundraiser is a meaningful way to support research, and it doesn’t have to take a lot of time or energy. Every event – big and sma...