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Jessica Bohonowych

Jessica Bohonowych is a graduate of Duke University, and holds a PhD in Pharmacology and Toxicology at the University of California, Davis. Incorporating her research background, knowledge of pharmacology and drug development, and teaching experience, Jessica works with Theresa Strong in managing FPWR’s grant portfolio, communicating research results and breakthroughs to our community, aiding in special projects such as the Clinical Trials Initiative and Molecular Resource Center, and is heading the development of the Global PWS Registry.

Recent Posts

Announcing our Second Round of PWS Research Grants from 2016!

The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada and FPWR-UK, is thrilled to announce our second round of PWS research recipients for 2016! Eight outstanding projects were selected for funding, totaling $746,200 in s...
December 12, 2016 Read More

Topics: Research

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

Many of the symptoms of PWS, including hyperphagia and behavior issues, likely originate in atypical structure and/or function of neurons in the brain. This presents an additional challenge to designing drug therapies for PWS, because drugs targeted ...
December 1, 2016 Read More

Topics: Research

Mental Health Professionals Release 10 PWS Research Recommendations

Mental health professionals have published 10 recommendations for Prader-Willi syndrome (PWS) research. These recommendations create urgency for further research and treatments to improve quality of life and increase independence for people with PWS....
October 13, 2016 Read More

Topics: Research

Developing Oligonucleotides To Rescue Missing SNORD115 In PWS [VIDEO]

Dr. Stefan Stamm has been actively involved in the PWS research community for a number of years. His group has received FPWR funding to explore the complex biology of SNORD115 and SNORD116 in PWS, as well as pursue ways to rescue the function of thes...
October 3, 2016 Read More

Topics: Research

Real-World Data, Real-World Evidence, and PWS

"Real-world data" and "real-world evidence" (RWD and RWE) are hot buzz words in the fields of healthcare and research. This is an emerging area of data acquisition and analysis, with the potential to transform clinical research and patient care. It i...
September 8, 2016 Read More

Topics: Research

Social Communication: Its Role In Behavior & Cognitive Development In PWS

In social communication, the ability to appropriately recognize and process facial expressions is critical to understanding others' emotional and mental state. People can often "read" emotions on someone's face, including happiness, sadness, fear, su...
August 29, 2016 Read More

Topics: Research

The Gut-Brain Connection: Breakthroughs in Hunger & Satiety Signaling

There's been a lot of buzz in the scientific literature about the "gut-brain connection" — the two-way communication occurring between the brain and the gut. This communication can occur directly through nerve signals, and indirectly by hormones secr...
August 22, 2016 Read More

Topics: Research

Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain

Adolescents and adults with PWS often struggle with temper outbursts, compulsive behaviors, and self-injurious behaviors such as skin-picking. These behavioral challenges impact the quality of life for those with PWS and for their families and caregi...
August 2, 2016 Read More

Topics: Research

Can PWS Interventions Be Delivered By Telehealth?

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...
July 27, 2016 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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