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FPWR Blog

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Adults With PWS: Aging and Health - What Families Should Know

Adults with Prader-Willi syndrome (PWS) can experience earlier-onset changes in health and daily functioning. During a 55‑minute presentation at the United in Hope PWS conference, Dr. Laura de Graaff (Erasmus MC, Rotterdam) discussed practical steps ...
September 17, 2025 Read More

Topics: Adults

Soleno Therapeutics Releases a Statement to the PWS Community

A message from Soleno Therapeutics to our PWS Community:
August 26, 2025 Read More

What's Happening in PWS Research: Summer 2025

Welcome to an inside look at some of the impactful research taking place to improve the lives of individuals with Prader–Willi syndrome (PWS). In this interview, four FPWR research team members—Theresa Strong, Lauren Schwartz-Roth, Marc Ridilla, and ...
August 19, 2025 Read More

Topics: Research

Honoring Leaders Who Inspire: 2025 FPWR Award Recipients

Each year, the Foundation for Prader-Willi Research (FPWR) recognizes outstanding individuals who have made a profound difference in the lives of those affected by Prader-Willi syndrome. This year, we honored two remarkable leaders for their contribu...
August 18, 2025 Read More

Welcoming Karla Blair and Nicci Peterson to the FPWR Team

We’re excited to introduce two new members of the FPWR team: Karla Blair and Nicci Peterson! As parents, advocates, and passionate members of the PWS community, Karla and Nicci bring heartfelt commitment and a personal perspective to our work. Their ...
August 12, 2025 Read More

Topics: News

Exploring the HERO Trial: Investigating ARD‑101 for Hyperphagia in PWS

We recently hosted a webinar featuring Dr. Tien Lee and Dr. Manasi Jaiman of Aardvark Therapeutics. They dove into the science and promise behind ARD‑101—an innovative oral medication aimed at curbing hyperphagia in individuals with Prader‑Willi synd...
July 23, 2025 Read More

Topics: Hunger Satiety, Clinical Trials Opportunities

Clinical Trial Results Show Promise for Managing Aggression and Hyperactivity in PWS

A newly published study on the use of guanfacine extended release (GXR) in individuals with Prader-Willi syndrome (PWS) marks an important step forward in addressing challenging behaviors such as aggression, skin-picking, and hyperactivity. Funded by...
July 15, 2025 Read More

Topics: Research, Behavior

Post-Conference Glow: Highlights from United in Hope 2025

Still United, Still Inspired We're still riding the wave of connection, energy, and inspiration from United in Hope 2025! This incredible event brought together three powerful organizations - the Foundation for Prader-Willi Research (FPWR), the Prade...
July 7, 2025 Read More

Understanding Swallowing Difficulties and Aspiration in Infants with PWS

Did you know that swallowing issues are extremely common in babies with Prader-Willi syndrome (PWS)? A recent study from Cook Children’s Medical Center (CCMC) in Texas took a closer look—and what they found is something every clinician and parent of ...
July 2, 2025 Read More

Topics: Research, Parents, Children 0-3

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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