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Caroline Vrana-Diaz

Caroline Vrana-Diaz, Ph.D. is the Research Project Coordinator for the Foundation for Prader-Willi Research. She received a B.S. in Biology from Davidson College in 2014 and a Ph.D. in Epidemiology from the Medical University of South Carolina (MUSC) in 2019. Caroline joined FPWR in May of 2019, and in this role, she works with the PWS Clinical Network Site database, FPWR’s grant portfolio, and analyzes data and creates research manuscripts for FPWR projects.

Recent Posts

FPWR Joins the Rare Disease Diversity Coalition

Improving diversity, equity, inclusion, and accessibility (DEIA) in PWS clinical research is a priority for FPWR, and we are working to partner with experts and other patient groups working in this area. FPWR has recently joined the Rare Disease Dive...
July 2, 2024 Read More

Topics: News

FPWR Genome Study Insights: Caregiver Views on Pharmacogenomics for PWS

The FPWR Genome Study, full title “Whole Genome and RNA Sequencing Analysis in Prader-Willi Syndrome," is an ongoing whole genome sequencing study among 50 individuals with PWS. The goal of the study is to determine if genetic variants outside the PW...
May 27, 2024 Read More

Topics: Resource Development, Research, Parents

Malignancies in Prader-Willi Syndrome: What New Research Reveals

Many of the symptoms of Prader-Willi syndrome (PWS) are well known, including problems with the hypothalamus, low muscle tone, hyperphagia, behavioral issues, and the risk of obesity and related complications. However, as people with PWS are living l...
December 19, 2023 Read More

Topics: Research

Innovative FPWR-Funded Projects Receive Additional Funding

FPWR’s grant program focuses on supporting innovative, high risk/high reward research in its early stages, with particular emphasis on supporting projects that will lead to new treatments for PWS.
May 23, 2023 Read More

Topics: News

Study Confirms Growth Hormone for PWS Does Not Worsen Scoliosis

A new long-term study on scoliosis and growth hormone has been published. The publication, Effects of 8 Years of Growth Hormone Treatment On Scoliosis In Children With Prader-Willi Syndrome shows that 8 years of growth hormone treatment has no advers...
July 1, 2021 Read More

Topics: Research

FPWR Launches First of Kind PWS Genome Project

FPWR is pleased to announce the launch of an exciting new research study: the PWS Genome Project. This study will provide new insight into how variations across the entire genome influence the range and severity of symptoms in people with Prader-Will...
May 14, 2021 Read More

Topics: Research

PWS Probiotics Research Addresses Constipation, Abdominal Fat and More

Two recently released studies represent good first steps to identifying possible uses of probiotic supplementation in PWS. The studies looked at effects of probiotic use on constipation, abdominal fat, fasting insulin and insulin resistance levels, w...
January 12, 2021 Read More

Topics: Research

Study Reveals Features of Schaaf-Yang Syndrome Adult Phenotype

A new study sheds light on the clinical characteristics of Schaaf-Yang Syndrome in adults. In addition to other important findings, the study suggests there is more overlap between PWS and Schaaf-Yang Syndrome than previously understood, and confirms...
December 14, 2020 Read More

Topics: Research

Adenotonsillectomy as a Treatment for Obstructive Sleep Apnea in PWS

High quality sleep is essential to a child’s growth and development. Obstructive sleep apnea (OSA) occurs when the muscles in the airway relax during sleep, causing a narrowing or closure of the airway, with temporary interruptions of breathing and s...
October 28, 2020 Read More

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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