Just like the elite athletes competing in the Olympic Games, our community is passionate, dedicated, and persistent in their pursuit of victory! As our Olympians aim for gold, we are relentlessly working towards treatments for Prader-Willi and Schaaf-Yang syndromes.
We are thrilled to announce the FPWR Olympics: a celebration of achievement and inclusivity, inspired by the 2024 Paris Games, taking place from July 26 through August 11! Our mission? To celebrate our community’s victories and achieve the ultimate reward: treatments for PWS and SYS.
How can you get involved?
Share your #GoldMoment
Our loved ones achieve incredible things every day, facing challenges with great determination. Their moments of triumph deserve the same celebration as any Olympic victory! Share a photo or video using hashtags #GoldMoment #FPWROlympics and tell us about a recent milestone, a victory big or small, or a moment that filled your heart with pride. After all, every victory deserves a gold medal!
Be a Champion of Hope: Donate
For individuals with PWS and SYS, a life without limitations feels like a distant dream. Research is unlocking new possibilities and your donation, big or small, brings us closer to life-changing treatments. Join our team of Olympic supporters with a donation today!
Go for the Gold: Fundraise for Treatments
Lead the charge for a brighter future! Every dollar makes a difference! Rally your friends, family, and community to join the FPWR Olympic Games. There's no better way to maximize your impact! Raise $250 or more, and you'll unlock a limited-edition FPWR Olympic Games Swag Bag! Get started today!
Need fundraising ideas? We have created a toolkit full of challenges and social content that will light a fire under you and your supporters! Find customizable graphics, tips, and resources to help make the most of your fundraising efforts. Check out the Olympic Toolkit!
Need help getting started? Email Natalie.Brenneman@fpwr.org.
Every dollar raised makes a meaningful impact. Last year, FPWR invested $4 million into research ($4M!) – a feat made possible by supporters like you. Your contributions are funding critical clinical trials such as VNS4PWS, creating essential resources for our research community like the PWS & SYS Biorepository, and advancing our understanding of the cellular deficits behind PWS & SYS.
Thanks to our incredible community, our first potential treatment for PWS is right around the corner. Your continued support will pave the way for more treatments, opportunities, and independence for our loved ones. Thank you for being a part of our movement!
