New call-to-action
New call-to-action
New call-to-action

2020 FPWR Conference Speakers — Sneak Preview!

Hear the latest in PWS research from experts in the field and engage one-on-one with researchers finding treatments for our loved ones with PWS.

Speaker Highlight Blog Conference 2020

You won’t want to miss these speakers at the 2020 Virtual PWS Family Conference, October 6–9.

Inspiration, hope, people who get it — that’s the 2020 Virtual PWS Family Conference! At this free virtual conference, you can join like-minded game-changers and get direct access to the people, knowledge, and inspiration you need to help your child.  

Hear the latest in PWS research from experts in the field and engage one-on-one with researchers who have a deep interest in finding treatments for our loved ones with PWS. Experts include:

  • Dr. Harold van Bosse
  • Patrice Carroll
  • Elizabeth Roof

and many more!

If you're a member of the PWS community, we have something for YOU because this conference is for YOU! The FPWR conference is for families of all ages— we have something for everyone! Highlighted sessions include:

Children Ages 0-2

School Age Children

All Ages

Research

New Parents Connect Session

Moving the Barriers for Improved Behavior

Optimal Nutrition

PWS Clinical Trials Panel

Navigating Your Insurance Coverage and Estate Planning

Improving Social Functioning

Deconstructing Anxiety in PWS

What's Happening in PWS Research?

   

Orthopedic Challenges in PWS

Return of Results: CARE-PWS

   

Grandparents Connect Session

Return of Results: DESTINY-PWS

   

Take Action for PWS Research!

Study Highlight: Pitolisant

   

Acceptance and Commitment Parent Training

 
   

Behavior Fireside Chat

 

 

With premier experts in their fields and a FREE all-virtual live program, this conference promises to be an event to remember! Sign up now to reserve space at the sessions you want to attend. 

Register for 2022 Conference Sessions!

Topics: News

Melissa Demand

author-image

Melissa became involved with FPWR in 2014 after her son, Kemett, was diagnosed with PWS. That year she hosted her first One SMALL Step Walk which raised over $115,000 and earned herself the honor of hosting the FPWR conference in Austin, TX in 2015. Melissa has over 9 years of fundraising and development experience and a Masters in Social Work from The University of Texas with an emphasis on Community and Administrative Leadership. Melissa will be assisting with database management and administrative duties.