About the Foundation for Prader-Willi Research

We’re not just waiting and hoping for new treatments, and a cure, for Prader-Willi syndrome. We’re aggressively doing something about it. The Foundation for Prader-Willi Research was established with one aim in mind: to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

We are uniquely focused on research and developing new therapies. Our devotion to finding new forms of treatment, and ultimately cures, is what drives us.

The Foundation for Prader-Willi Research was established in 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi syndrome lead more healthy and fulfilling lives. Today, FPWR is composed of hundreds of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS.

Through our world-class grants program, translational research programs, and the development and support of PWS research tools, FPWR is playing an active role in research in order to develop new treatments for PWS and improve the health and well-being of those with PWS.

With the support of the PWS community, FPWR’s research programs have grown from funding small pilot studies to encompassing a robust and diverse research portfolio that facilitates and guides the PWS research agenda. We have played an instrumental role in advancing the field of PWS research by supporting innovative research, encouraging collaboration, engaging pharmaceutical companies, and enabling a research-ready community.