• Help us complete the PWS puzzle

    Help us complete the PWS puzzle

  • Help Raise Funds for Prader-Willi Research!

    Help Raise Funds for Prader-Willi Research!

    Create your own campaign to benefit the FPWR and help fund additional PWS research.

  • Family Stories

    Family Stories

    Learn how other families just like yours have dealt with a diagnosis of PWS and have taken action to change their loved ones' futures!

  • Donate Now!

    Donate Now!

    Help the FPWR find new treatments and a cure for Prader-Willi Syndrome. You can help defeat PWS!

  • FPWR Research Conference

    FPWR Research Conference

    Join us November 15-16 in Garden City, NY for the latest in Prader-Willi research!

  • Now Accepting Research Proposals!

Families, we are here to say that there is hope!


Webinar: Fundraising Outside the Walk

You are invited to attend a free webinar: Fundraising Outside the Walk. Have you considered hosting a fundraising event to benefit PWS research? Join four veteran event hosts as they share their tips for hosting events “Outside the Walk”. Sarah...

Theresa and PWSA(USA) representatives meet with the FDA

PWS at the FDA

On Tuesday, June 17, key leaders and scientific staff members at the FDA took time out of their busy schedules to learn about the serious challenges of PWS, to hear about our loved ones’ unmet medical needs, and to...

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