• "Finding My People"

    One mother's FPWR conference experience

  • Help Raise Funds for Prader-Willi Research!

    Help Raise Funds for Prader-Willi Research!

    Create your own campaign to benefit the FPWR and help fund additional PWS research.

  • Donate Now!

    Donate Now!

    Help the FPWR find new treatments and a cure for Prader-Willi Syndrome. You can help defeat PWS!

  • Family Stories

    Family Stories

    Learn how other families just like yours have dealt with a diagnosis of PWS and have taken action to change their loved ones' futures!

Families, we are here to say that there is hope!



Finding My People

Last Sunday I was walking home alone along the hike and bike trail near my house. It’s a lush trail that runs along Lady Bird Lake in Austin, TX.  I waved hello to the Stevie Ray Vaughn statue, got...


Got Teeth? You can help research!

Your children’s lost baby teeth are valuable to the PWS research community! Scientists are extracting cells from inside the teeth in order to help understand the genetics of PWS. FPWR-funded researcher, Dr. Reiter at University of Tennessee, says, “we...

Get the Latest FPWR and PWS News!

You will receive our newsletter and email blasts about upcoming events and PWS-related issues.

Our Partners