Understanding the Pathophysiology of Schaaf-Yang Syndrome to Improve Care and Treatment Options
Dr. Fleischer at Southern Illinois University School of Medicine, in conjunction with Dr. Schaaf from Heidelberg University in Germany, is conducting a study entitled, “Understanding the Pathophysiology of Schaaf-Yang Syndrome to Improve Care
and Treatment Options.” The goal of this study is to better understand Schaaf-Yang Syndrome patients and the treatment of those with Schaaf-Yang Syndrome.
Study participants will be asked to complete a questionnaire and provide medical records for the investigators review. Travel is NOT required.
If you would like more information or are interested in participating please contact the study coordinators as soon as possible!
Contact Information
Please share this opportunity with other families in the SYS community!