Got Anxiety? Want to help pave the way for new medicines to treat anxiety in PWS? Levo Therapeutics and the Foundation for Prader-Willi Research are working to develop a new questionnaire for use in clinical studies of novel treatments for PWS. We want to know more about how anxiety is expressed in people with PWS.
We invite you to complete a short (5-10 min) questionnaire in the Global PWS Registry to help us understand the usefulness of this new “PWS Anxiety and Distress Questionnaire (PADQ)”. We will ask you to complete the PADQ twice; now and then two weeks later.
If you are the primary caregiver for a person with PWS, age 5 or older, please help us build the best assessment possible by completing the PADQ.
If you are already enrolled in the Global PWS Registry, please login, click on “take surveys” next to the PWS participant’s name, and complete the “Anxiety and Distress” survey.
If you are not already enrolled in the Global PWS Registry, you will first need to register and set up an account, complete the ‘Getting Started’ survey, and then complete the “Anxiety and Distress” survey.
If you have questions about the PADQ or the Global PWS Registry, please contact Jessica Bohonowych at info@pwsregistry.org, or call 843-302-6295.