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Working Toward an Independent Future

Recent posts

Type Title Author Replies Last Postsort icon
Family Story Meet Nicole Stone admin 2010-02-13 23:52
Blog Post Touching Video by FPWR Member Rachel Pastiloff Jeff Porter 2010-02-13 15:54
Blog Post New Volunteer Opportunity - Share your Story about how PWS has impacted your Family Jeff Porter 2010-02-13 14:40
Blog Post Long term safety and benefits of growth hormone therapy Theresa Strong 2010-01-27 22:41
CiviCRM Activity World Rare Disease Day Theresa Strong 2010-01-27 13:19
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Donate Now!

Help the FPWR find new treatments and a cure for Prader-Willi Syndrome. You can help defeat PWS!

Current Projects

  • Exploring the potential mitochondrial dysfunction
  • Activation of the maternal allele
  • Growth Hormone Replacement Therapy

Upcoming Events

  • Sat, 2010-05-01 13:30
    136 Kentucky Derby Fundraiser
  • Sat, 2010-05-15 08:30
    Go the Extra Mile for PWS
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