Meet Nicole Stone

Valentine’s Day is often a time of expressing our affection for those in our lives who are dear to us   For Pat and Cheryl Stone, however, what they received on Valentine’s Day of 2001 touched their hearts in a very different way.  That day, instead of hearts and flowers, the Stones received a diagnosis of Prader-Willi syndrome for their precious daughter, Nicole. “It was the mind-numbering revelation that bonds us all,” says Pat. 

Touching Video by FPWR Member Rachel Pastiloff

Watch a video put together by new FPWR Member Rachel Pastiloff.

New Volunteer Opportunity - Share your Story about how PWS has impacted your Family

Share your story with us about how PWS has impacted you and your family.  Give advice, share stories, and help others.