The PWS Registry
The Global PWS Registry is being prepared for launch - please visit this page often for updates!
"The creation of this registry will allow families to document all of the medical, psychological,
and behavioral issues their child may have over time, and to then have an open and complete
dialogue with their physicians about these issues. Additionally, this will give families the
opportunity to indicate their willingness to be contacted about possible research studies
and researchers the possibility of having greater access to those families who wish to
participate in research studies." -- Dr. Jennifer Miller, University of Gainesville
For further details please contact email@example.com
You can help support the Global Prader-Willi Syndrome Registry! Click here to make your donation!