Prader-Willi Syndrome Research Plan

Phase I of the Prader-Willi Syndrome Research Plan is now available!  

The Prader-Willi Syndrome Research Plan outlines the priority research questions identified at the Prader-Willi Syndrome Research Strategy Workshop.  The Workshop brought together leading scientists and physicians in areas relevant to PWS, and asked them to identify needed resources and pressing research questions.  The recommendations of the Workshop were reported in the “Prader-Willi Syndrome Research Strategy Workshop: Report to the Community”.   Phase I of the Prader-Willi Syndrome Research Plan outlines a plan to accelerate PWS research by supporting the recommendations of the Workshop, including the development of critical resources and support of high priority research projects with direct relevance to the advocate community.  Click here to download the plan.

The PWS Research Strategy represents a significant milestone in the advancement of PWS research towards our common goal of eliminating the challenges of Prader-Willi syndrome and improve the lives of those living with the syndrome.

Investment to Date:                                        $250K

Total Suggested Investment (Phase I):          $1M

The plan is based on the recommendations developed at the PWS Research Strategy Workshop.

You can download a full copy of the Prader-Willi Syndrome Research Strategy Workshop: Report to the Community here