FPWR Accomplishments

Since its inception in 2003, the Foundation for Prader-Willi Research has had a significant impact upon the field of Prader-Willi syndrome research. To date, the FPWR has:

• Committed more than $1,300,000 in support of PWS research
• Funded 34 high-quality research projects at top medical and research institutions around the world, with the resutling findings published in highly respected journals such as Nature Neuroscience, Endocrinology, and  BMC Genomics
• Originated and sponsored the annual Advocacy Day on Capitol Hill to raise awareness of the need for more federal funding for PWS research
• Co-sponsored the X Prize for Genomics, a project aimed at rapidly sequencing entire human genomes
• Created a partnership with the Salk Institute for Biological Studies that brings together three Salk Institute laboratories to study appetite regulation in PWS
• In November of 2009, FPWR partnered with the National Institutes of Health(NIH), the Canadian Institutes of Health Research, the Prader-Willi Syndrome Association (USA), and FPWR-Canada to sponsor of the first multidisciplinary workshop on Prader-Willi syndrome, held near the NIH campus in Bethesda, Maryland. The Prader-Willi Syndrome Research Strategy Workshop brought together more than 60 top scienitists in PWS and related fields to create a comprehensive research strategy for PWS.