Child 6-12

In the summer of 1999, Mark Roth and Lauren Schwartz-Roth of Seattle, WA were expecting their first child with great anticipation.  However, during the pregnancy, Lauren noticed decreased fetal movement, and when the doctor confirmed that the baby was too small, it became apparent that something was wrong.  "We were terrified," said Lauren.  Lauren was admitted to the hospital, and after many long weeks of monitoring, their daughter, Emma, was born 6 weeks early via C-section.  "The doctors were puzzled by Emma,"  Mark and Lauren recall.

Valentine’s Day is often a time of expressing our affection for those in our lives who are dear to us   For Pat and Cheryl Stone, however, what they received on Valentine’s Day of 2001 touched their hearts in a very different way.  That day, instead of hearts and flowers, the Stones received a diagnosis of Prader-Willi syndrome for their precious daughter, Nicole. 

“It was the mind-numbering revelation that bonds us all,” says Pat.  â€œThis is not an experience that can really be described.” 

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Abby Porter is a 7 year old

Valentine’s Day is often a time of expressing our affection for those in our lives who are dear to us   For Pat and Cheryl Stone, however, what they received on Valentine’s Day of 2001 touched their hearts in a very different way.  That day, instead of hearts and flowers, the Stones received a diagnosis of Prader-Willi syndrome for their precious daughter, Nicole. â€œIt was the mind-numbering revelation that bonds us all,” says Pat.